AMPUTEE SUPPORT GROUP OF NORTHERN VIRGINIA NEWSLETTER

ASGNVA "Learning to Walk" Logo

Monthly Meetings: First Tuesday of every month, 7:30-9:00 pm, Telestar Court Building, Gemini room, 2990 Telestar Court, Falls Church, Virginia 22042
Contacts:  Daphne Burroughs, 703-369-2615
Dorsey Vengrouskie, 301-627-7152 *
Beth Harris, 540-439-3656, betheharris@earthlink.net

George Willis, 703-971-2883, gwillis464@aol.com
Paula Golladay, 703-820-7987, pgolladay@cox.net
Jason Bulger, 301-680-2159, jason.bulger@medstar.net
Web Page: www.inova.org/rehabilitation/amputee_support.htm

Support Group Meeting

Our 20th Anniversary Meeting on October 5 was held at 7:00 pm so that we could enjoy a pot luck supper and have a Tupperware Party.  Very few people attended the meeting - Pat and Joce Graham, Helmut and Betty Bernat, Inspector Jack, Pat McCardle (a new amputee) and his wife, Jason Bulger (the Marketing Major who won lots of Tupperware Bucks), two professionals who are new to our group - Mike Vogt and Luke from Prosthetic Solutions - Beth Harris and Julie Roberts, the Tupperware Lady.  It's too bad that more people didn't attend because we had a fun time and the Tupperware Party was a great social event.  We got to know each other a lot better with the games - plus we won fun prizes AND raised money for ASGNVA. 

It was noticed, and voiced by more than one person, that none of our associate (professional) members attended the meeting even though it was our 20th Anniversary Meeting.  The only "professionals" that seem to assist the group are the Nascott group - Jason Bulger and Charlie Crone - who attend on a regular basis.  They are, however, constrained by the fact that we are "sponsored" by the hospital and not our own entity. 

Our sponsor, INOVA Fairfax Hospital, Rehabilitation Center, had no representatives at the meeting, nor have they participated in any meetings since October 2003 when we held the last Watermelon Social.  Dr. Shin, what is the Rehabilitation Center providing to the members of the Amputee Support Group of Northern Virginia?  How about some speakers?  How about someone attending a meeting every once in a while so that we can ask them questions about rehab?  Dr. Shin, as a physiatrist, will you be willing to give the support group a lecture at the December 7 meeting?  ASGNVA needs a  talk about the role of the physiatrist in the rehabilitation process as well as the "steps" an amputee takes through the rehabilitation process, including your perception of the new amputee's benefits of joining a support group and why you would advise a new amputee to join a support group.  We could start there and work on topics that stem from the "base" of the rehabilitation process for our meetings.  We need to have someone from both INOVA and ASGNVA to work together to plan events and coordinate efforts for any new amputees that are seen by the INOVA Rehabilitation Centers.  Any takers?

And as for the other "professionals" on our associate member list, I can assure you that it doesn't look very good to the members that attend the meeting that you don't show up - and why should anyone attend a meeting if they aren't going to have any experts to answer any questions?  Charlie gets pounded every time he shows up and he is very diplomatic but he always teaches us something.  And because we know Charlie, we trust Charlie, and so we go to Charlie.

We also need an ASGNVA member to step forward and take charge of this coordination effort.  Everyone on the contact list is already overloaded with tasks and ASGNVA needs someone else to volunteer to stay in contact with the Rehabilitation Center at INOVA Fairfax Hospital and Dr. Shin to coordinate speakers, events and to ensure that any amputees that come through the Rehabilitation Center have Amputee Support Group information provided to them.  Get in touch with someone on the contact list to volunteer for this position - don't let another amputee slip through the cracks and blunder around unassisted.

News and Announcements

ASGNVA Funds/Donations – ASGNVA has received donations for 2004 in the amount of $813.40.  Funds used, year-to-date, have been $613.00.  So far, contributions have funded spending.  However, there is still $330.83 to be submitted to Fund 352 (ASGNVA), leaving an estimated balance of $1,000. 

If you enjoy your membership in ASGNVA or just want to help fund the activities of the Amputee Support Group of Northern Virginia, please donate. Remember to indicate Fund 352 to ensure that your donation goes directly to the Amputee Support Group.  You can donate online at https://connect.inova.com/j/inovanet.srt/forms/donation/donatenow.htm.  If you don't have internet access, you can donate by phone or obtain a donation form by calling 703-289-2072.

A big THANK YOU to our donors for their generous contributions to date:

Contribution Date

Contributor

Contribution Amount
March 18, 2004
Paula Golladay
$50.00
March 19, 2004
Joyce Hawes
$25.00
April 9, 2004
Helen O. Weinberger $50.00
May 14, 2004
Richard L. Pearce
$25.00
June 10, 2004
ASGNVA (from the closure of our checking account)
$163.40
July 16, 2004
Frank Walter (in appreciation for assistance and support given to Joce Graham)
$300.00
August 6, 2004
Anonymous
$200.00
TOTAL

$813.40

Services and Products

VIRGINIA DISABILITY COMMISSION WEB SITE. - The Disability Commission, a legislative commission chaired by the Lt. Governor, is now being staffed by Jeff Gore and Amy Marschean from the Division of Legislative Services (DLS). The new Disability Commission web site is now online. The link to this web site is http://dls.state.va.us/disability.htm.

ASGNVA Lending Library – Come to a meeting and borrow a book or see what new handouts are available.  Some new items have been added to the library as described below.  If you can't attend a meeting, but would like to borrow a book or would like a copy of a document, contact Beth Harris or Jason Bulger (see contact list at beginning of newsletter).

Depression and Disability, A Practical Guide.  Karla Thompson, PH.D., and The North Carolina Office on Disability and Health.  Studies have shown that symptoms of depression may be 2 to 10 times more common in individuals with disabilities or chronic illnesses, and depression is one of the most common "secondary conditions" associated with disability and chronic illness.
Fly-Rights.  A Consumer Guide to Air Travel.  US Department of Transportation.  A booklet designed to explain your rights and responsibilities as an air traveler. 
Protect Your Memories.  Your Guide to Loss Prevention.  State Farm Insurance.  A guidebook on safeguarding your home and precious belongings from loss. 
Americans with Disabilities Act: A Guide for People with Disabilities Seeking Employment.  US Department of Justice, Social Security Administration and Equal Employment Opportunity Commission.  A booklet designed to explain your reasonable accommodations with regards to employment under ADA and how to file a complaint if you feel that your rights have been violated.
Fun & Fitness Centers-Access Equals Opportunity: Your Guide to the Americans With Disabilities Act.  Council of Better Business Bureaus' Foundation.  A booklet designed to explain to business owners, specifically fitness centers, their responsibilities under the Americans with Disabilities Act.  
What Do You Require When Looking for Accessible Housing.  Pacific Nonprofit Training Center under a Fair Housing Initiatives Program grant from the Department of Housing and Urban Development.
Americans with Disabilities Act: Accessibility Guidelines for Buildings and Facilities (ADAAG).  US Access Board., September 1998. 
Building a True Community, Final Report, Public Rights-of-Way Access Advisory Committee.  US Access Board, US Architectural & Transportation Barriers Compliance Board, January 10, 2001.

Member Updates

There isn't much news this month on members.  Joce is doing well as is William.  We've gotten a few new amputees New Amputee Information Packets and welcome letters were sent to them.

Tom Scott - It was reported in the Washington Amputee Association's newsletter that Tom Scott attended the Pot Luck Picnic.  If you recall from previous issues, Tom has been very, very sick and weak and, after release from the hospital, was unable to wear his prostheses.  He has rallied himself from that deep hole he was in after the hospitalization apparently because it was reported that he attended the picnic "walking around without the aid of crutches and/or cane."  Way to go, Tom!

Dorsey Vengrouskie has moved from a rental house into her own home.  Congratulations, Dorsey, John and Delian!  Dorsey's new phone number is listed in the contacts section at the beginning of the newsletter.

Scheduled Events

Georgetown Amputee Support Group Meeting Canceled - The Georgetown Amputee Support Group has canceled it's meetings indefinitely due to lack of participation.  Don't let this happen to your support group.  Whatever support group you attend, attend a meeting occasionally and let the "worker bees" know that you're alive and give them any suggestions you might have.  Say thanks while you're at it.  You never know, you might even enjoy yourself, make a new friend or learn something.

Monthly Meeting
– The next monthly meeting is November 2, 2004.  We will be having a guest speaker at the November meeting.  Michael Vogt, CPO, from Prosthetic Solutions will give us a lively presentation.  He's gathering things together now so that we can "play" with things as he talks about them. Oh boy, Show and Tell! So join us, after you vote, and we'll all meet and learn something new from Michael.  

October
 National Liver Awareness Month
www.liverfoundation.org

 Breast Cancer Awareness Month
National Breast Cancer Awareness Month

 National
Physical Therapy Month
www.apta.org

 "Talk About
Prescriptions" Month
www.talkaboutrx.org

National
Brain Injury Awareness Month
www.biausa.org

 

1

Happy Birthday Rob!
Rob Daniels

2

Happy Birthday Brad!
Brad Lowstuter

3Kit's Miracle Mile

Kit's Miracle Mile
Happy Birthday Jaime!
Jaime Buenaventura

4

5

Amputee Support
Group Meeting of Northern Virginia (7:00 MEETING TIME AND POT LUCK AND TUPPERWARE PARTY)

6

Happy Birthday Mark!
Mark Senker

7

8

Happy Birthday Bob!
Bob McKenna

9

10

National School
Lunch Week

www.asfsa.org

11

12

Fredericsksburg Area Amputee Support Team Meeting

Winchester Amputee Support Group Meeting

13

SAVE (Stop
America's Violence Everywhere) Today

www.ama-assn.org/
go/alliance

14

15

Happy Birthday Laura and Norman!
Laura Harsh
and
Norman Tiemann

16

17

National Health Education Week
www.nche.org

18

19

Happy Birthday Liz!

Liz Thomas

Washington Amputee Association Meeting

20

Kernan Hospital Amputee Support Group Meeting

21

22

Happy Birthday Joce!
Jocelyn Graham

23

24

Respiratory Care
Week

www.aarc.org

25

26

27

28

Ability With Mobility Meeting

 

29

Happy Birthday Rich!

Rich Guarrasi

30

Happy Birthday Wells!
Wells Petras

31

Spring Forward, Fall Back
 Daylight Savings Time Ends

Halloween
 Happy Halloween

 

 

   

November
American Diabetes Month
American Diabetes Association
1701 North Beauregard Street
Alexandria, VA 22314
(800) 232-3472
www.diabetes.org
 1
 2
Please Vote!
PLEASE VOTE!

Amputee Support Group Meeting of Northern Virginia
 3
 4
 5
Happy Birthday Sami!
Sami Massous
 6
 7
National Allied
Health Week
Association of Schools of Allied Health Professions
1730 M Street, NW
Suite 500
Washington, DC 20036
(202) 293-4848
(202) 293-4852 Fax
asahp1@asahp.org
www.asahp.org
 8
 9
Happy Birthday Doug!
Doug Sloan

Fredericksburg Area Amputee Support Team Meeting

Winchester Amputee Support Group Meeting

 10
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 12
 13
 14
 15
 16
Washington Amputee Association Meeting
 17
Kernan Hospital Amputee Support Group Meeting
 18
 19
 20
 21
GERD Awareness Week
(gastroesophageal reflux disease)
International Foundation for Functional Gastrointestinal Disorders
PO Box 170864
Milwaukee, WI 53217
(888) 964-2001
www.aboutgerd.org
 22
 23
 24
 25
Happy Thanksgiving!
Ability With Mobility Meeting
Canceled
 26
 27
 28
 29
Happy Birthday Tom & Patricia!
Tom Mercer
and
Patricia Shafer
 30




Ability With Mobility – Last Thursday of the month, 6:00-8:00 pm, 2nd floor, Adventist Rehabilitation Hospital of Maryland, 9909 Medical Center Dr, Rockville, MD.  Contact Sandy Shehadeh, 240-864-6200. 
Fredericsksburg Area Amputee Support Team (FAAST) – 2nd Tuesday of the month, 7:00-9:00 pm, The disAbility Resource Center, 409 Progress Street, Fredericksburg, VA.  Contact Greg Wright, 540-899-2655 or 800-333-4102.
Kernan Hospital Amputee Support Group – 3rd Wednesday of the month, 6:00-8:00 pm, Room G604, Kernan Hospital, 2200 Kernan Dr., Gwynn Oak, MD.  Contact Mark Senker at 410-581-7027.
Washington Amputee Association (WAA) 3rd Tuesday of the month, 6:30-8:30 pm, National Rehabilitation Hospital, 102 Irving Street, NW, Washington, DC, Ground Floor Dining Room (rear section, near the windows and behind the partition).  Contact Roy Dwyer (301-897-2816) or Becky Lehman, RT/NRH, 202-877-1578, rebekahlehman@juno.com.
Winchester Amputee Support Group – 2nd Tuesday of the month, 5:30-6:30 pm, Conference Room, 2nd floor, Winchester Rehabilitation Center, 333 W. Cork St, Winchester, VA.  Contact Christie Augustine, 540-536-5113.


LOOKSuccess Story:  Rebecca Pratte

    Grocery shopping for Rebecca Pratte was often a difficult journey that impeded her independent lifestyle. Pratte, who uses a manual wheelchair, had extreme difficulty when shopping by herself and having to use the large carts to hold her groceries.
    Before the town of Nipomo, where Pratte lives, had any local grocery stores, Pratte traveled south to Santa Maria to do her shopping and frequented a grocery store specifically because they had an accessible shopping cart. This cart allowed her to shop independently and had a plastic basket to hold groceries with metal legs on wheels. The shopping cart also had Velcro that would attach to the front of her wheelchair, allowing her to push the cart throughout the store. Unfortunately, Pratte was told upon arriving to use it one day that it had been stolen and the manufacturer no longer made that shopping cart.
    So Pratte was faced with the choice of maneuvering a large shopping cart by herself with her wheelchair or asking her friends or family members to go with her and assist her in selecting and purchasing her groceries. She consistently felt dependent on her friends and family and knew it didn't have to be that way but also found it difficult to maneuver the cart.                           
    As Nipomo grew, a new Vons supermarket moved into town. Even though they had many accessible features -- a few lower scales and bag dispensers in the produce department and checkout lanes accessible to wheelchairs -- they did not have an accessible shopping cart. The grocery store did have scooters, but these were difficult for Pratte to use, as she had to transfer to them and was not comfortable with how they operated. In addition, she did not want to leave her expensive wheelchair at the front of the store for fear that it may be stolen.
    When Pratte approached the store manager with this issue, they were very polite and offered to have an associate help her selecting the groceries and pushing the cart. Although Pratte appreciated this offer, she still felt dependent on someone else to get her groceries.
    One day, Pratte received a phone call from her Father in Bakersfield who told her about a television commercial he saw for the AT Network and suggested that she call the 1-800 number to find out more information about how to obtain an accessible shopping cart. Pratte, excited to try another avenue, took his suggestion and found herself speaking with Kim Cantrall, the AT Network Information and Referral Coordinator.
    After Pratte explained her dilemma, Cantrall immediately began researching accessible shopping carts. In addition, Cantrall and Pratte decided to try the double up their efforts and contact the corporate headquarters of Safeway, who owns the Vons grocery story chain. After speaking with numerous Customer Service Representatives, the District Manager and General Manager, Pratte received the suggestion to call the Construction Planning Department, possibly because her store was very new.
    Pratte did just that. After the initial conversation with a representative from the Construction Planning Department, it only took two days to get word that the basket she requested was on its way. Two weeks later, Cantrall received a call from the store General Manager who said the cart had arrived.
    Arriving at the store to use it for the first time, Pratte was greeted with inquisitive looks from store employees who wondered what the cart was to be used for as it sat and waited for Pratte. Continuing in her self-advocacy and overall desire to educate others, Pratte gave a tutorial as how it worked and went off to shop without assistance.
    Others who shop at the Nipomo Vons are thankful for Pratte’s efforts and the cart is used consistently by others, including some who use it as a walker with a basket. Now, Pratte is going to approach her local Walmart for another cart so she and others in her community can live more independently. “I don't understand why they don't have more accessible carts,” said Pratte. “Now I can go to the grocery store by myself. Shopping is much nicer and more independent.”



Election 2004: Determine Your Future -- Vote!
Tired of feeling the economic squeeze when you need access to community services for transportation, attendant care, educational resources, and health care? When federal, state, and local budgets feel the pinch, the first services that elected officials cut affect the community that can least afford the budget slash: people with disabilities.
There is one very effective way to fight back: Vote!


People with disabilities hold some important distinctions: we make up 20% of Americans over the age of 18; we register to vote in the lowest numbers; and among registered voters, we have the lowest numbers for voter turnout. No wonder people with disabilities bear the consequences of the budget axe -- we aren't getting out to the polls! Elected officials aren't paying attention because we haven't mastered the art of making them listen on Election Day.

Important Facts: Accessible voting machines are now being used in many states, thanks to coalition efforts in 2003.
(Photo courtesy of AAPD).


If you thought 2000 was close, the election of 2004 promises to be even closer. There are many in the civil rights arena who feel that the 2004 election will be the most important in our lifetime. Why?

The answer? Get out and vote on November 2, 2004. If you cannot make it to the polls, contact your registrar of voters ASAP to request an absentee ballot. Only 52% of Americans exercise their franchise to vote. For people with disabilities, the numbers are even lower and we are the largest minority group (40 million voters) in the country!

Elected officials respond to the groups that take the time to register voters in their district. When you want someone to listen to your concerns on an issue, the way to get a response is to communicate that your community registered 500 or 5,000 or 50,000 voters in that official's municipality, district, or state. Not only will they pay attention to you as an organizer, they will consider changing their vote. They want to stay in office. That's how voting influences the votes of elected officials.

Voting is important because it is a concise way to advocate your position. What are the important issues in your community? Housing? Transportation? Employment? Services targeted to meet the needs of the disability community? These are the reasons why people with disabilities need to vote. It starts at your doorstep. Vote Election Day, November 2.


Voting ID Tips -
Be sure to bring identification when you vote, especially if you are a new registrant. Your ID must include your name and address. Government-issued IDs, such as state ID cards and drivers' licenses, are acceptable, also utility bills (because they show your name and address), bank correspondence that shows your name and address, or letters from government agencies that show your name and address. 


Hassled at the Polls? -
If you are prevented from voting on Election Day or are hassled at the polls, call Election Protection at 1-866-Our-Vote (866-687-8683). There are 6,000 attorneys ready to make sure you get to vote on Election Day and willing to assist you in solving any problems.

Election Day Complaints - The Department of Justice wants to know if you encounter any difficulties at the polls. If you need to make a complaint, clearly describe the situation and include the exact address of the polling place, the name of the poll worker, and the county and state in which the event occurred. Send it to John Wodatch, Chief of Disability Rights, DOJ, Civil Rights Division, 950 Pennsylvania Ave., NW, Suite 4039, Washington, DC 20530, or e-mail john.l.wodatch@usdoj.gov.

The 2000 presidential election brought to the forefront the weaknesses that have plagued our country's voting system for far too long. By identifying the many problems, particularly those such as inaccessible polling places and voting machines that affected voting for people with disabilities, the end result was the enactment of the Help America Vote Act of 2002 (HAVA). This major piece of legislation promises to impact every part of our voting process and procedures -- from voting machines to provisional ballots to voter registration to training for poll workers -- by requiring state and local election officials to overhaul their systems to ensure that they are more inclusive, as well as to prevent what happened in Florida from happening again.

Does the enactment of HAVA mean that problems on Election Day or with the election process won't occur? Of course not. No one expects HAVA to make the system perfect. But it will require the voices of those who use the system to ensure that whatever is wrong can be fixed. That is where you, as a self-advocate, come in.


The upcoming federal election in November will enable you to learn whether your election officials, commission or board is living up to its obligations under HAVA.  Making a difference starts with you, and the right to vote is one way that we can each make that difference. Work to improve accessibility at your polling location, speak up to your local officials and poll workers, and take action through self-advocacy.

We need elected officials who have the courage to defend (and expand on) the civil rights victories that people with disabilities and their allies have gained in the last 30 years (ADA, IDEA, Section 504, Medicaid and all disability rights laws).  How do we get such courageous elected officials?  WE VOTE!
As a Virginia Voter, you have the following rights: As a Virginia Voter, you have the following responsibilities:  
Note that the above statements are only a summary of U.S. and Virginia voting laws. They are not meant to amend or supplant those laws.

If you have any questions about your voter registration status or about elections in your locality, please contact your local voter registration office.  The phone number can be found on the internet at www.sbe.state.va.us under the Voter Registration Section, or in the blue Government pages of the phone book under “voter registration” for your locality.

If you feel your voting rights have been violated or that you may have witnessed an election law being broken, contact the State Board of Elections at 1-800-552-9745, or via email at info@sbe.virginia.gov.


”You may be here for only a short while. But, in whatever part you play, be remembered as part of a legacy...changing someone's life for the better. It's that legacy that never dies.”
Author Unknown