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  Specific Neurological Conditions (M - Z)     [all categories]
  Spinal Disorders 3
  3 months post-op, 2-level Charite ADR, not all is sunshine and roses. (Page 1)

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Author Topic:   3 months post-op, 2-level Charite ADR, not all is sunshine and roses.
mmglobal
Member

Posts: 2963
From: Fountain Valley, CA, USA
Registered: Sep 2000

posted 12-19-2002 02:00 PM     Click Here to See the Profile for mmglobal     Edit/Delete Message   Reply w/Quote
Hi All!!!

I hope everyone is having a great holiday season.

I'm always posting the positive. It's time for a quick reality check. Nothing bad is happening, but I need to let everyone know that my recovery is not as perfect as my posts would lead you to believe.

Last Wednesday (12/11), my Med-Ex I had two things occur. First, I went from feeling wonderful to feeling some pain when I transition from flexion to extension. Second, my Med-Ex therapy really seemed to set off my cervical spine. As soon as I went off the meds it was clear that they were masking some cervical pain. It's usually there and gets moderate for about 2 or 3 days a week.

Since then, (and a few times before then) I've had some pretty lousy evenings with moderately high pain levels. Some of the time without severe pain have been accompanied by that nagging discomfort that doesn't make you scream, but it makes you miserable anyway.

I had been waiting for the other shoe to drop. This is not it! Maybe it won't drop. For a day or two I really worried about the jabs when going to extension. I worried about a mechanical problem, or maybe scar tissue starting to form. I can rationalize it away now, so I'm not going to worry about it.

I'm starting to get some release on my hamstrings and quads. They have been unbelievably tight. It makes me think that my body is starting to relax after 3 years of constant guarding. Maybe my body is starting to allow true flexion and extension at the affected segments. As I start to regain motion where I had none, the surrounding tissues must figure out how they'll move again. Maybe adhesions formed? Whatever??? In any case, I'm still not concerned. I'm still in fantastic shape compared to where I was.

I always posted about what I was about to start, but really chickened out when it came to it. I still haven't played tennis. I quit riding my bike because of the flexion to extension thing (getting off the bike). I still haven't gone skiing. Although I kicked a soccer ball around a couple of times, I'm not participating in any physical activities except for PT and my very mild workouts. I'll stop the Med-ex therapy for a short time and see if it helps.

It's all still good. No narcotics in 7 weeks (tomorrow). No AD's in 4 weeks. I think I'm really starting to feel the lack of AD's. It probably takes that long for the boost you get from them to fade away completely. I do get some pangs of depression, but since things are going relatively well, it's not too much of a problem.

I just want everyone to fully understand. I love posting my success and I still consider my surgery to be more successful than I could have possible imagined. However, I hope to let everyone who's following me know that although my recovery still is miraculous, it's not all sunshine and roses.

Take care all,

Mark

------------------
*** L4-5 and L5-S1 Disc Replacement (SB Charite III) 9/20/02 by Dr. Zeegers, AlphaKlinik, Munich, Germany ***

2/25/00 Microdiscectomy/laminotomy L4-5, 10x15x7 mm left paracentral protrusion

9/23/00 CANCELED L4-S1 360 fusion CANCELED

9/15/01 emergency microdiscectomy L5-S1, 14x13x10 mm left paracentral protrusion

Both discectomies resolved hip/leg/foot symptoms, but left the underlying back pain. Residual left foot pain and numbness. Lost axial reflex (left ankle).

Researching artificial disc options. ProDisc vs. SB Charite III looks like a toss-up, but you can see which one won.

*** The AlphaKlinik was wonderful. My expectations were high, but the clinic, it's staff, and Dr. Zeegers far exceeded them!!!

*** L4-5 and L5-S1 Disc Replacement (SB Charite III) 9/20/02 by Dr. Zeegers, AlphaKlinik, Munich, Germany ***

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BamaBoy
Member

Posts: 833
From: Northern Gulf Coast
Registered: Aug 2002

posted 12-19-2002 02:18 PM     Click Here to See the Profile for BamaBoy     Edit/Delete Message   Reply w/Quote
Hi Mark,

Yes indeed, there's a bed of thorns in whichever route all of us elect to choose when it comes to dealing with our spinal problems but that's what makes this one 'helluva' forum, don't you think? Best wishes from down here in Dixie for you an yours this Holiday season....as you well know, NEVER, EVER give up!

Peter

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Becs
Member

Posts: 1503
From: Omaha, NE
Registered: Sep 2000

posted 12-19-2002 02:24 PM     Click Here to See the Profile for Becs     Edit/Delete Message   Reply w/Quote
Hey you!

Still sounds as though you're doing remarkably well. Your set backs are all normal, but it's good of you to post them to make sure everyone understands.

Those pains you get are normal too, yet they tend to make one a bit paranoid don't they? I hated them, no so much because I couldn't handle the discomfort, but that I was so deathly afraid of returning to my previous physical state. It took me a LONG time to get over that and I still get paranoid from time to time because I still get sore from time to time. And there was days during soccer season where I was really uncomfortable, but once I realized that it didn't necessarily mean something was wrong it was easier to deal with. But, I still sometimes get fearful when I have a bad day...even though it's miniscule comparatively. Who's to blame us though??? We go from virtually handicapped to somewhat normal in a relatively short time period that it's almost surreal. I don't think the fear ever truly leaves, but I just try to take each day for what it's worth.

Also, I found it interesting about your cervical issues. I think I had more problems with my upper back and neck when I became active again then I did with my lumbar. I think it's mainly from my body carrying itself different now. Although, I did have a few neck injuries in high school and I guess the shift in posture could flare-up old wounds? But, my neck still misbehaves from time to time. I missed a game this season because I woke up the morning after a tough game and couldn't move my head for a few days.

And about the ADs. I think its possible that your depression "pangs" are normal parts of your recovery too. I hit that point after my last two surgeries. It always happened to me in spurts...like when I would hit a wall with rehab. It's all just so emotionally draining. You force yourself into a constant adrenaline high for your recovery and it sucks when you hit a wall and have no real release of the adrenaline. At least that's how it was for me.

Anyway, haven't talked to you in awhile, but I'm still keeping up with your progress. Keep it up!

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Frost
Member

Posts: 2326
From: Ottawa, Ontario, Canada
Registered: Dec 1999

posted 12-19-2002 02:48 PM     Click Here to See the Profile for Frost     Edit/Delete Message   Reply w/Quote
Keep on keeping on, Mark. You are the best!

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Jacob7705
Member

Posts: 155
From:
Registered: Sep 2002

posted 12-19-2002 02:57 PM     Click Here to See the Profile for Jacob7705     Edit/Delete Message   Reply w/Quote
Mark,

You know this already but I will say it anyway, it takes time, and as that goes you are on an incredible curve. Take it easy and take care, and as usual a great post.

Regards,

------------------
Jacob

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lisatampa
Member

Posts: 919
From: Tampa,on the beautiful Gulf Coast of Florida
Registered: Sep 2001

posted 12-19-2002 03:03 PM     Click Here to See the Profile for lisatampa     Edit/Delete Message   Reply w/Quote
(((((mark)))))))))

I hope you feel better to get some of that off your chest.......don't worry,You'll be doing fantastic again soon.....

I was that way early post op.....I wanted NO set-backs,NO bad days,nothing.....well,it felt good not to hide it anymore and tell everyone about my bad days.......but,I always pulled through,and I just got through another set-back last weekend........

I'm sure your recovery will be WAY quicker than mine, but we'll both get there.....I know it......I know I may not be perfect,and I may not be a total whoppin success,but I'll make it.....I'll make it enough to do the things I need to do...............you'll probobly pass me by with flying colors, and I'll be very happy for you.....

God Bless,
Merry Christmas,
Love Lisa

------------------
39+1/F L4-5,L5-S1,Herniations& L2-3 Bulge from lifting up my 2yr old 1/22/00.
Had PT,5 Lumbar ESI's..
2/01 Head on MVA Bulged C4-5, Had 3 failed CESI's, PT.
6/01 L4-5,L5-S1 IDET
11/27/01 IDET considered failure/retrogressed..OSS states inoperable due to too many bad disks.
02/05/02 EMG shows no H reflex,S1 nerve root radiculopathy
02/15/02 Repeat Discogram shows new mild L3-4 Bulge(no concordinant Pain)
04/22/02 L4-S1 360 Fusion w/new OSS....
11/01/02 MRI shows C3-4 and C4-5 disk bulging
11/21/02 Diagnosed w/Myofacitis

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Topmech
Member

Posts: 573
From: California
Registered: Jan 2000

posted 12-19-2002 05:37 PM     Click Here to See the Profile for Topmech     Edit/Delete Message   Reply w/Quote
You've got lots of time, listen to your body set your goals further out. After 3 years of sedentary living it will take at least 3 months of exercising after you finish PT to get your muscles back in shape. Remember with exercises form is everything.

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wavelength
Member

Posts: 141
From: Indiana
Registered: Apr 2001

posted 12-19-2002 06:13 PM     Click Here to See the Profile for wavelength     Edit/Delete Message   Reply w/Quote
Hey Mark;
SO what are you saying?
You mean to tell me that you are not perfectly pain free in every way, not able to do that total bend over backwards on the balance beam like a 12 year old girl, not able to push your truck up a hill on a wet street, not....oh....never mind...!!!!
Lol!

Actually, I'm relieved to hear that you too have some of what I call residual normal pain, as I was beginning to get bummed out reading your All is Perfect posts, as I am still feeling a slight but persistent pain(I classify it as 3-4, which is still WAY less than the 7-8-9 pre ADR)

Hang in there bro... I guess I'm about 2 months ahead of you in my recovery phase, and although I only have 1 SB Charite', I can tell you that every day, every minute that passes I get better !!!!!

We are traveling to our hometown(Austin TX)tomorrow, and I plan to bring my clubs to play golf for the first time since forever it seems like, and the first time since the surgery. I'm only going to try 9 holes, but I know the ol' back is going to handle it.

BTW: I noticed in 1 of your posts you referred to playing keeper- I too played Keeper(as well as Sweeper) in High school , college, and in a Men's League for many years.

Have you ever thought that maybe because of the torsion, tweaks, and abuse you put on your body flying to the ball, that it might have been 1 of the factors contributing to your DDD?

oh well, long post.
Thanks for your posts, I appreciate your help!
PS: I'm going to be interviewed by the media about my surgery, for the Doctor who did it.
peace
wave
(Jim)

------------------
X-RAY& MRI:
DDD, severe stenosis L4-5, facet hypertrophy , Disc Obliteration(!?!) L4-5

3 ESI
L3-S1 Facet Selective Nerve Root Blocks

10/01 Microdiscetomy/Laminectomy/Foramenotomy L4-5
MEDS: Duragesic, Norco, Ambien
7/11/02 Scheduled for SB Charite'III prosthesis Anterior approach
10/12/02 12 weeks Post-Op
Not 100% pain -free, but now at 3-4 instead of 7-8

[This message has been edited by wavelength (edited 12-19-2002).]

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Joanne
Member

Posts: 2732
From: Laguna Hills, CA
Registered: Dec 1999

posted 12-19-2002 06:18 PM     Click Here to See the Profile for Joanne     Edit/Delete Message   Reply w/Quote
but Mark, it sounds like the pain is cervical more than lumbar. That's positive news (in a warped sort of way).

Yes, the ADR's effect follows us for weeks before lack of them begins showing up.

I cannot believe you are still off painkillers with that aggressive PT.

Thanks for your "realistic" post. You still, as you say, are doing better than anyone could imagined or guess.

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rslater4
Member

Posts: 1146
From: Illinois, USA
Registered: Sep 2002

posted 12-19-2002 07:58 PM     Click Here to See the Profile for rslater4     Edit/Delete Message   Reply w/Quote
Mark,

Thanks for the realistic post. Hopefully, writing about what you are going through is helpful to you. Perhaps, you are pushing a little too much too soon. I'd suggest just trying to go a little slower.

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Jenna2
Member

Posts: 178
From: Ohio
Registered: Aug 2002

posted 12-19-2002 08:56 PM     Click Here to See the Profile for Jenna2     Edit/Delete Message   Reply w/Quote
Thanks for being honest. We are thrilled to hear that you are doing well, and even happier to know that you are human like the rest of us!!! Even on the greatest days, I try to remind myself that I am still a spiney, and will experience some valleys in between those peaks. Knowing this, I am learning how to live my life appreciating my great days for every moment. I guess we should all look at life like that. Unfortunately, I had to become a spiney to realize it! Have a wonderful holiday!
Jen

------------------
slip on ice 12/00
2/01 dx sm L5 hern
3/01 3 inj caudal block series
4/01 second insult - 40# child jumped into arms
5/01 dx massive L5 hern
7/01 B/B symptoms develop - urgent micro-d performed
8/01 - 9/01 PT
2/02 returning back/leg pain
3/02 sm recurrent hern dx
7/02 sciatic pain quadruples
8/02 PT/TENS/ESI - no lasting relief
9/02 massive L5 reherniation dx - sign disc space narrowing
10/02 decomp lumbar lami/open disc/removal of scar tissue

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Mark N
Member

Posts: 2531
From: Indiana
Registered: Jan 2000

posted 12-19-2002 09:26 PM     Click Here to See the Profile for Mark N     Edit/Delete Message   Reply w/Quote
Mark, A little realism is good now and then. Recovery is usually a hopeful event where we ignore the pain hoping it is temporary and part of the healing. Usually that is just what it is and it sounds like you are on the road for a good recovery. Be patient and I hope you continue to get better.

------------------
1993 microdisectomy L3-4
1996 3 level 360 lumbar fusion
1999 thoracic fusion T8-9

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~*~deb~*~
Member

Posts: 4977
From: beautiful eugene oregon
Registered: Oct 2000

posted 12-19-2002 09:36 PM     Click Here to See the Profile for ~*~deb~*~     Edit/Delete Message   Reply w/Quote
i'm smiling at your pangs of good conscience.

it goes without saying that within the miraculous recovery/outcome that there would be some minor flaws.

all in all/overall, it still sounds fantastic to me.

i hope your success continues!!

have a great evening!

deb

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mdee
New Member

Posts: 9
From: redway,ca,usa
Registered: Dec 2002

posted 12-20-2002 06:12 PM     Click Here to See the Profile for mdee     Edit/Delete Message   Reply w/Quote
mark- i am new to this forum and am pretty excited to have "met" you- i am just learning about adr and am very interested. you've probably told it 100 times, but if you're into it would you tell me your story? and how you connected with the german clinic?thanks! peacemdee

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mmglobal
Member

Posts: 2963
From: Fountain Valley, CA, USA
Registered: Sep 2000

posted 12-20-2002 06:51 PM     Click Here to See the Profile for mmglobal     Edit/Delete Message   Reply w/Quote
mdee, send email to mgh@ @globalsoftware. .net (remove extra characters) and I'll send you my phone #

Search this forum and the Spinal Disorders 2 forum for the following keywords: charite, prodisc, adr, artificial - you'll find a lot of discussion. Specify only the subject line and you'll get a managable number of hits.

I'm happy to share my story. I've been on the forum for over 2 years. The ADR surgery in September was my third surgery in 3 years. I had no life and had been on opiates for those three years and then some. It's an absolute miracle for me to experience the kind of recovery I have.

Jim, yes I'm a hard-core keeper. I started because it was the only way into a mens league that I wanted to play in. Next thing I know, I'm taking lessons from pro keepers. For 5 years I taught a clinic for kids who wanted to learn keeper skills. Never charged a dime and never turned a kid away. It was always magic, being able to deal with the kids who loved playing keeper as much as I did. I really wish I would have started before my late thirties.... I coulda been a contender!

Becs... you rock!!! you were my inspiration. Returning to college soccer after your ordeal is incredible.

Thanks to everyone for the kind replies. Take care, and pain-free vibes out to all.

Mark

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BigJoeV
Member

Posts: 562
From: Nashville, TN, USA
Registered: May 2002

posted 12-21-2002 12:13 AM     Click Here to See the Profile for BigJoeV     Edit/Delete Message   Reply w/Quote
Hey Mark! It does, indeed, take a while to get back to life as it used to be...kind of . It has been a year since my miracle and I am so much better than I ever imagined I could be. I really never thought I would have my life returned to me. It is not "normal", but it is wonderful and pain free. The things I used to think were terribly painfull I now think of as somewhat uncomfortable. I guess the pain I had for those years changed my perspective greatly.

I have been pain free for months now and I walk quite a bit considering everything. It is hard to imagine life back to where it was only a matter of five or so years ago. Considering where I was only a year ago, that is beyond comprehension.

I did not want this reply to be about me, but more to say that is just takes time. Longer than we want, but in a few more months you will suddenly realize how far you've come and it will be exciting. The day by day grind makes it hard to have a true perspective on our progress. It's when there is enough time to look back and see where we were and where we are now that we realize how blessed we are.

I'm so glad you are finding life in the "normal lane" again. It truly blesses all of us to see one of ours find a success story. Have a blessed Christmas and a Great Day!
Joe

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Bob B
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Posts: 1417
From: mechanicville,ny,usa
Registered: Jan 2000

posted 12-21-2002 09:31 AM     Click Here to See the Profile for Bob B     Edit/Delete Message   Reply w/Quote
Mark
I know it must have been difficult to make this post, but you are to be respected for it. Honesty is critical for any of us who truly want to help others. I think you will continue to get better (with ups and downs) over time but the really is none of us will ever be the "same" as we were pre injury.

Please continue to post because you have been so helpful and knowledgable.We really appreciate it my friend.

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StillSmiling
Member

Posts: 5565
From: Northern, CA, USA
Registered: Jul 2000

posted 12-21-2002 04:04 PM     Click Here to See the Profile for StillSmiling     Edit/Delete Message   Reply w/Quote
Mark,
You are still my hero! You wanted so badly to have an ADR, and you did it. All in all, it seems to be working out much better than any fusion, and that is success, isn't it?

You still had a major surgery, and you'll still have residual problems, since your pain didn't come over night, and I think you're doing great, bearing through it all.

Still, to show to us, that you are not 100% and a triathlete (yet), is being truthful without adding the sugar to it. Surgery is still rough.

You're still my hero, and I sure hope I can have cervie ADR's someday, and fusions reversed. Oh, what a dream. You give me hope. What a great time of year to be inspired......Thanks Mark. May you be well, and on to more healing......love, Lynnie
Riter2000@aol.com

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notwalkin
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Posts: 851
From: washington State
Registered: Mar 2000

posted 12-22-2002 02:39 AM     Click Here to See the Profile for notwalkin     Edit/Delete Message   Reply w/Quote
Mark,

Your are about the last person, I would accuse of being biased. It is true that your preference for the ADR was quite clear but I believe most here; admired your determination, seek and you shall receive attitude. I have a similar preference regarding surgery, (it does not involve an ADR).

I have certainly experienced resistance from what I now term THE UN-INFLICTED.

Basically, these are friends and family who "try" to accuse me of playing doctor. My answer, is now no response. This forum, Dr. W., inclusive has given enough information for me to make my own informed judgement call. (The last advise I was suppose "to take", came via an operating technician. "Oh, yes I seen tons of them done". My response, really how's the follow-up? (No response). Its each our own row, and collectively I think "we" (this forum does quite well).

It will be sometime for your body to loosen and regain its intended function. In my opinion, you, and you alone will be the best judge. It is your nerve endings that are attached to those receptors, not the therapists. Best of luck and continuing strength in your recovery.

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mmglobal
Member

Posts: 2963
From: Fountain Valley, CA, USA
Registered: Sep 2000

posted 12-23-2002 01:23 PM     Click Here to See the Profile for mmglobal     Edit/Delete Message   Reply w/Quote
Bob, when I first read your reply, I thought saying it must be difficult to post was rather silly.... I just posted, it wasn't difficult. Then it started to sink it... it was difficult. I don't know why, but I always present the positive in such a positive light, if I mention the negative, it doesn't even get noticed. I have this problem with my doctors too. They hear the good stuff and everything else gets ignored.

So, if anyone is still reading this thread, WHY IS IT DIFFICULT TO POST THE NEGATIVE?

It seems that we go in cycles. I'm lucky enough to be having a recovery, so posting negatively must cast a cloud on my rosy recovery. It's not much of a cloud. In spite of what I'm posting, I'm still in fantastic shape and very hopeful about my recovery.

I did forget to mention that I must be dealing with some sort of inflammation. When my activity levels are higher, not only the back pain goes up, but my foot hurts and the rock in my shoe returns. It's not that bad, but it does give me pause.

Lynnie, cervie ADR is coming soon. I sure hope we get to meet someday.

NotWalkin, you are so right about the uninflicted. They will never get it. Only you can make the decisions about your treatment options.

Joe, I wish I could see you out walking with BeBop and your grandbuddies.

Take care all,

Mark

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senzaspina
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Posts: 308
From: Northern Virginia
Registered: Aug 2001

posted 12-23-2002 04:40 PM     Click Here to See the Profile for senzaspina     Edit/Delete Message   Reply w/Quote
Mark, thank you for your candor. By sharing your experience, you have really taken a big load off my mind in getting my journey started. I hope to have my ADR doen by this summer. Things are progressing too fast. Two years ago, I had a normal MRI and no symtoms.

I will remember your posts and your comments. I do need to know that it is not all a bed of roses like you have said.

Take care.

Thelma

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mdee
New Member

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From: redway,ca,usa
Registered: Dec 2002

posted 12-23-2002 07:52 PM     Click Here to See the Profile for mdee     Edit/Delete Message   Reply w/Quote
hey mark, wish i had read your post before calling you! anyhow, i think we all tend to have an underlying panic button 'cuz of the pain and the fear of it. sounds pretty normal to have discomfort in the neck and lots of other places too as you begin to use your body differently. i've had success with acupuncture, also what's called "direct non-force technique" chiropractics. no popping or cracking! also yoga- nothin' like it to put me "in my body". how 'bout massage? drink lots of water. lots. thelma-would love to talk with you! giulimd@saber.net can't say thanks enough! love mdee

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mmglobal
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From: Fountain Valley, CA, USA
Registered: Sep 2000

posted 12-23-2002 11:38 PM     Click Here to See the Profile for mmglobal     Edit/Delete Message   Reply w/Quote
I have 2mm and 4mm bulges at c5-6 and c6-7. They cause only mild to moderate symptoms and have been completely overshadowed by lumbar problems and masked by opiates taken for the more severe lumbar problems. So, cervie problems are not from changes related to the surgery. They are just less serious problems showing themselves as the more serious problems are resolved.

Mark

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mdee
New Member

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From: redway,ca,usa
Registered: Dec 2002

posted 12-24-2002 04:00 PM     Click Here to See the Profile for mdee     Edit/Delete Message   Reply w/Quote
i think that posture is everything-our bodies have lots of muscles and we have to use each and every one of them to help hold these tired old spines together and give them a chance to heal. floating in salt water is killer (like snorkelling) total support. i have this nagging feeling that my C's are messed up, too. keep trying to deny it but the symptoms are there. i just try to hold my head up using all my neck muscles, and it seems to help the neck feel less pressure. what kind of pt do you do? peacemdee

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mdee
New Member

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From: redway,ca,usa
Registered: Dec 2002

posted 12-24-2002 04:03 PM     Click Here to See the Profile for mdee     Edit/Delete Message   Reply w/Quote
i think that posture is everything-our bodies have lots of muscles and we have to use each and every one of them to help hold these tired old spines together and give them a chance to heal. floating in salt water is killer (like snorkelling) total support. i have this nagging feeling that my C's are messed up, too. keep trying to deny it but the symptoms are there. i just try to hold my head up using all my neck muscles, and it seems to help the neck feel less pressure. what kind of pt do you do? peacemdee

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