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  Specific Neurological Conditions (M - Z)     [all categories]
  Spinal Disorders 3
  6 weeks post-op. 2-level Charite ADR

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Author Topic:   6 weeks post-op. 2-level Charite ADR
mmglobal
Member

Posts: 2963
From: Fountain Valley, CA, USA
Registered: Sep 2000

posted 11-01-2002 06:38 PM     Click Here to See the Profile for mmglobal     Edit/Delete Message   Reply w/Quote
It's been a while since I posted a general update. My last threads were about a week ago, concerning tapering the OxyContin and Vicodin vs. going cold turkey.

I decided to take my pharmacist's advice and give myself 10 days off the OxyContin before I tried anything. That gave me almost another week to taper using Vicodin before thinking about any big changes. By the time 10 days got here, the taper had gone so well, it seemed like just a few days more would do it. That was Tuesday. Today, Friday, I'll take just 4 doses of 1/2 a regular Vicodin. That may be low enough for me to stop completely tomorrow.

It's still mostly withdrawal pain and discomfort. I have very little low back pain. The muscle pain, because of my very weak back muscles is still there, but less and less every day. This is what determines my sitting and standing tolerance. Early in the day, it's great. As the day wears on, my sitting and standing tolerance decreases substantially. I view all this a temporary and am still looking forward to skiing and playing tennis in a few short months.

So, there is nothing terribly new. My back (and abdomen too) continues to improve. I'm keeping the discomfort level up by rapidly reducing my meds. But that is what will have gotten me pain-med free at 6 weeks post-op. I hope this isn't premature. I'm hoping I can quit tomorrow. We'll see. I'm already starting to taper off the Wellbutrin. That won't take more than 2 weeks. Then, the only thing that'll be left is the anti-inflammatory. Since the FAA doesn't care about those, I'll stay on them a while longer, until I'm convinced that I don't need them.

I did go flying with my father a few days ago. I had quit a couple of months before my surgery because my pain levels were too high. So, after three months, it felt great to be in the air again. My wife and I are off to the farmer's market at the Huntington Beach Pier, then we are off to the Getty Museum. I can't believe that I get to do this again.

So, nothing but good news from here. I'm sending out all the pain-free vibes I can muster for all my spiney friends.

Take care all,

Mark

------------------
*** L4-5 and L5-S1 Disc Replacement (SB Charite III) 9/20/02 by Dr. Zeegers, AlphaKlinik, Munich, Germany ***

2/25/00 Microdiscectomy/laminotomy L4-5, 10x15x7 mm left paracentral protrusion

9/23/00 CANCELED L4-S1 360 fusion CANCELED

9/15/01 emergency microdiscectomy L5-S1, 14x13x10 mm left paracentral protrusion

Both discectomies resolved hip/leg/foot symptoms, but left the underlying back pain. Residual left foot pain and numbness. Lost axial reflex (left ankle).

Researching artificial disc options. ProDisc vs. SB Charite III looks like a toss-up, but you can see which one won.

*** The AlphaKlinik was wonderful. My expectations were high, but the clinic, it's staff, and Dr. Zeegers far exceeded them!!!

*** L4-5 and L5-S1 Disc Replacement (SB Charite III) 9/20/02 by Dr. Zeegers, AlphaKlinik, Munich, Germany ***

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CPR coach
Member

Posts: 186
From: Maryland USA
Registered: Jun 2002

posted 11-01-2002 06:55 PM     Click Here to See the Profile for CPR coach     Edit/Delete Message   Reply w/Quote
Dear Mark,
I am so happy for you, and hope that your progress continues at such a fast pace.
I know that you cannot hardly wait to get rid of all of your meds. If you need the pain relief take that stinking Vicodin.
Aleve is an OTC anti-inflammatory that worked wonders for dental work that I had.
You may not be able to mix it with other NSAID's. You can also get a script for Naproxen without the sodium if you have any blood pressure concerns.
I was wondering if they do multilevel disc replacements of the cervical spine in Europe?
If you have any info on that subject I would be in your debt. I admire you for your persistence and courage.
Best of luck,
Lisa

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mmglobal
Member

Posts: 2963
From: Fountain Valley, CA, USA
Registered: Sep 2000

posted 11-01-2002 08:30 PM     Click Here to See the Profile for mmglobal     Edit/Delete Message   Reply w/Quote
Lisa, I don't have any specific information about replacement cervical discs, but I do remember seeing info about them. I believe that there is a clinical trial in the US for one of them happening now. Going to the manufacturer would be a good source. I'm still getting email alerts for several journals, so it I see anything, I'll post it.

Take care, thanks for the support.

Mark

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Tj @ NC3
Member

Posts: 119
From: In the Land of Elvis
Registered: May 2002

posted 11-01-2002 08:48 PM     Click Here to See the Profile for Tj @ NC3     Edit/Delete Message   Reply w/Quote
Hi Mark,
I have been following your progress with much interest. It is so good to here you
are doing so well.

I too am interested in the cervical
possibilities of ADR.

I will continue to check here for all
of the valuable knowledge that you can pass
on.

May your days continue to be as pain
free as possible.

Tony J.

------------------

Feb. 1995 C5-6 Lami-Micro Diskectomy
Feb. 2001 Above Re-done
(waste of time:( )
May 29 2001, ACDF C5-6 w/Donor bone, plate and screws. Left with
Chronic Pain in C 5-6 region, down Rt. arm into hand.
Current Meds:
Oxycontin 40 mgs 3x Day, and
Nortryptiline 25mgs 2-3 nightly.
Along with a new regimen...LAMICTAL up to 150 mgs BID

Finally faced up to the fact that even though I am "fixed" mechanically, the nerve damage may never heal properly.

My Many thanks to the people who Post here, for it has given me the best tools for Life with these challenges: Knowledge & Compassion.

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mmglobal
Member

Posts: 2963
From: Fountain Valley, CA, USA
Registered: Sep 2000

posted 11-01-2002 11:34 PM     Click Here to See the Profile for mmglobal     Edit/Delete Message   Reply w/Quote
Just so everyone understands that all is not sunshine and roses, the plan to go to the Getty was way too ambitious. Went to Farmers Market and had a nice dinner at Wahoo's. By then, the withdrawals were kicking in again. We came back home and watched a tribute to Woody Guthrie and Leadbelly... That was great! We used to sing our kids to sleep with Deportee. Where else could you see Dylan and Little Richard together? Lots of Arlo and Pete Seger, some Springsteen, Emmylou, Willie, Mellencamp. I was sorry they didn't have any Weavers.

Maybe we'll hit the Getty tomorrow. I'm not sure because I think I'll be trying no meds. I don't know how I'll be.

Take care all.

Mark

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nowiambionic
New Member

Posts: 29
From: hermosa beach,ca. usa
Registered: Oct 2002

posted 11-02-2002 04:04 AM     Click Here to See the Profile for nowiambionic     Edit/Delete Message   Reply w/Quote
I like Mark, have recieved a 2level disc replacement surgery this past July, only I'm a Prodisc trials patient from this country! My progress is definetly slower than mark's but i must admit it is SPECTACULAR.We do feel so well, that i know i do try and do way to much on occasion!! it's easy to do when you think you are back pain free as we are now,but Mark is right as the day wears on
its hard to stay active due to weak muscles.
I know of these ADRs for cervical patients, go to "espineinstitute.com" click on the surgeon top right corner of 2nd page, this leads to some news broadcasts of some surgeries for DDD lumbar like mine and i believe cervical disc replacements....i know my surgeon told me these would also work great for thorasic discs, the only problem is they would have to crack the breast bone, so they are trying to figure another way into that part of the body...also try "spineuniverse.com"
gary

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lisatampa
Member

Posts: 919
From: Tampa,on the beautiful Gulf Coast of Florida
Registered: Sep 2001

posted 11-02-2002 08:53 AM     Click Here to See the Profile for lisatampa     Edit/Delete Message   Reply w/Quote
I'm glad you are doing so great,Mark

Love,Lisa

------------------
39+1/F L4-5,L5-S1,Herniations& L2-3 Bulge from lifting up my 2yr old 1/22/00.
Had PT,5 Lumbar ESI's..
2/01 Head on MVA Bulged C4-5, Had 3 failed CESI's, PT.
6/01 L4-5,L5-S1 IDET
11/27/01 IDET considered failure/retrogressed..OSS states inoperable due to too many bad disks.
02/05/02 EMG shows no H reflex,S1 nerve root radiculopathy
02/15/02 Repeat Discogram shows new mild L3-4 Bulge(no concordinant Pain)
04/22/02 L4-S1 360 Fusion w/new OSS....

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mmglobal
Member

Posts: 2963
From: Fountain Valley, CA, USA
Registered: Sep 2000

posted 11-02-2002 03:55 PM     Click Here to See the Profile for mmglobal     Edit/Delete Message   Reply w/Quote
13 hours into no opiates. (After 3 years on them.) So far so good. I don't know how long it will continue to get worse. I can easily tolerate what I'm experiencing now. I'm finding out the places where I hurt, that the meds were covering up. That's not too bad either.

Mark

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ACDF7500
Member

Posts: 4122
From: Louisville KY USA
Registered: Jul 2000

posted 11-02-2002 06:59 PM     Click Here to See the Profile for ACDF7500     Edit/Delete Message   Reply w/Quote
Wonderful, Trooper! dee

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mmglobal
Member

Posts: 2963
From: Fountain Valley, CA, USA
Registered: Sep 2000

posted 11-02-2002 07:56 PM     Click Here to See the Profile for mmglobal     Edit/Delete Message   Reply w/Quote
17 hours in. Much worse than at 13, but still tolerable. I'm still finding out where I hurt even more.

Anyone know how long this will take?

Mark

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Beth406
Member

Posts: 1014
From: Chicago
Registered: Jul 2001

posted 11-03-2002 09:19 AM     Click Here to See the Profile for Beth406     Edit/Delete Message   Reply w/Quote
You are one determined man, I'll give you that. I'm not sure how long your withdrawal will take because I don't know the half life of your meds. But I would think in a week you should be down to barely noticing the effects. Try a good detox tea maybe? Help get it out of your tissues, etc. And drink plenty of water.

I was talking to my PT recently about ADR and he is very gung ho. When I told him about you, he wasn't even surprised. I know the med stuff is hard, but trusting yourself got you this far, you know? What if you do have to spend the next 6 months to a year rehabbing muscles? At the end of the tunnel you are home free. It's inspiring. Thanks. Take it easy, huh?

Beth

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BlueTopaz
Member

Posts: 2576
From: The Heartland...the Beautiful State of Nebraska
Registered: Sep 2000

posted 11-03-2002 11:59 AM     Click Here to See the Profile for BlueTopaz     Edit/Delete Message   Reply w/Quote
Yeah, Mark!

Shell

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mmglobal
Member

Posts: 2963
From: Fountain Valley, CA, USA
Registered: Sep 2000

posted 11-04-2002 09:01 AM     Click Here to See the Profile for mmglobal     Edit/Delete Message   Reply w/Quote
Day 3 starting now.

Day 1 was long periods of moderate to severe withdrawals, interrupted by short periods of feeling OK.

Day 2 was much better than day 1. Shorter periods of less severe withdrawals, with longer periods of feeling OK. The start of Day 2 really scared me because I felt significant back pain. I thought that I would be unsuccessful at staying off the pain meds because I would still need them. I went swimming in the am for the first time since the surgery. I couldn't believe how exhausted I got after about 150 meters. My arms were so heavy. When I got out of the pool, I was woozy... walked like a drunk. I don't know if I'm still anemic from the surgery or what, but I am not in THAT bad a shape. In any case, the back pain subsided and was VERY minor through the day.

The lack of meds is showing me how my c-spine hurts. I don't know how much of it is related to the withdrawals or muscle spasms, but I'll just ride it out for a while.

It looks like I'm going to be able to stay off the meds. I still can't believe it.

Mark

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robertmoffatt
Member

Posts: 330
From: Atascadero, California, U.S.
Registered: Feb 2000

posted 11-04-2002 12:41 PM     Click Here to See the Profile for robertmoffatt     Edit/Delete Message   Reply w/Quote
hang in there mark...

when i stopped the norco after 2 years, the first few days were the worst pain wise... but after those first few days i actually started feeling better than i do right now. My guess is that your body goes back to producing it's own chemicals the way it was supposed... just a theory

my withdrawals lasted a few weeks though.. rotten sleep. the itchy body feeling seemed to take over whenever i laid down to rest. Didn't seem to bother me when i was up moving around. A good reminder to keep me from wanting to ever take the meds again...

Thanks for posting... i've been wondering how you are doing..

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DesertWoman
Member

Posts: 2946
From: Tucson, AZ USA
Registered: Feb 2001

posted 11-04-2002 09:51 PM     Click Here to See the Profile for DesertWoman     Edit/Delete Message   Reply w/Quote
Dear Mark,

You are one hell of a strong man.

I am wondering what your withdrawal symptons are? How would you descibe them?

xxoo,

Karen

------------------
42/F/Mother of two beautiful sons.
Congenital defect in lower spine.
Severe stenosis, L5-S1 spondylolythesis grade IV with L5 spondylolysis.
Pain started 2/00.
11/06/00 Decompression and L5 Gill type laminectomy and L5-S1 posterior lateral fusion with pedicle screws and rods with autogenous iliac crest bone graft harvest.
AOL IM: DesertWoman01
Email and MSN IM: desertwoman42@hotmail.com
Enjoy life! This is NOT a rehearsal.
As close to pain-free as I could hope for! My recovery just took a long time (18 months).
Off all pain meds!

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Wattle
Member

Posts: 467
From: Australia
Registered: Mar 2000

posted 11-05-2002 01:32 AM     Click Here to See the Profile for Wattle     Edit/Delete Message   Reply w/Quote
So you didn't reach any toes then Mark - in the pool I mean

What's the latest report
Alison

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mmglobal
Member

Posts: 2963
From: Fountain Valley, CA, USA
Registered: Sep 2000

posted 11-05-2002 05:42 AM     Click Here to See the Profile for mmglobal     Edit/Delete Message   Reply w/Quote
Hi Karen!

Since I started cutting back, withdrawals have been mostly body aches and a nausious, queezy feeling. Sometimes the body aches seem to be in my joints, sometimes it seems to be muscular. These aches get pretty severe. The weight of my covers seems to make every joint in my toes hurt like hell! Sometimes it settles in a particular joint. My right shoulder has been particularly bad.

For the past couple of days, I wake with a severe headache and it really lasts a long time. My sleeping is really messed up too. No matter when I fall asleep, I can't seem to stay asleep beyond 3:30am. I had been sleeping better than ever since the surgery.

Whatever it is, it's all tolerable. I hope you are continuing to do well. Sorry I missed your post about muscle cramps. I've been barely able to keep up the questions I'm getting (via email) from potential ADR patients.

Wattle, Sunday was the swim I described. Monday was a workout in the gym. Treadmill, bike stretching and very light weights. I was only using three plates on the lat pull, chest press, and row - all these machines are very well stabilized, lumbar wise. Every stroke came with shaking back muscles! Minor crunches are very shakey too. I can't believe how out of shape I've gotten.

I paid for Monday's workout with substantial pain in the afternoon and evening. However, it wasn't my old back pain, so that's good news.

I see my local OS for a 6-week check and x-ray this morning. I'm not concerned about the x-ray. I know everything is in place.

Still biking?

Talk to you soon,

Mark

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